Updated: Dec 1, 2020
It’s not surprising that many have not heard of Adenomyosis (pronounced Ad-no-my-o-sis). “Adenomyosis is a benign chronic disease where the lining of the uterus (endometrium) grows into the muscle layer of the uterus (myometrium). This can happen diffusely throughout the uterus-appearing as little specks, or can lead to the formation of larger growths called adenomyomas.” - theendoworld.com
This disease is classified into: Focal Adenomyosis: localized to one area of the uterus Adenomyoma(s): benign tumor/mass that’s similar to focal but more extensive Diffuse: Adenomyosis spread throughout the uterus
It’s estimated that 40-50% of those with Endometriosis also have Adenomyosis. When I was told I had an Adenomyoma in 2015, I was told in a matter-of-fact tone, like it was no big deal and the specialist went on to talk about Endo.
No one told me what would happen if that one growth turned into more and eventually spread throughout my uterus No one told me about the symptoms associated with it or how it could affect fertility outcomes For a long time it was difficult for me to tell what was due to Endometriosis and what was due to Adenomyosis. After the last surgery however, I started noticing how many symptoms I had associated with Adeno, which can be just as painful and debilitating as Endo I’m on Lupron more so for my Adenomyosis than my Endometriosis right now otherwise hysterectomy is the next step, which is a cure, but not an ideal one
Roop Bassra, RN
BSc Psychology, BSc Nursing